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The aim of this study was to describe and compare family members’ experiences of approach in encounters with healthcare professionals and possible feelings of alienation in the professional care within four care contexts: the care of older people, psychiatric care, palliative care and diabetes care. The design was an explorative cross-sectional survey study. Data were collected in Sweden using the Family Involvement and Alienation Questionnaire-Revised (FIAQ-R). It measures family members’ experiences of the healthcare professionals’ approach and the family members’ feeling of alienation from the provision of professional care. A total of 1047 questionnaires were distributed to family members using convenient sampling method, of which 294 were included. Data were analysed using rank-based, non-parametric statistical methods. The results indicated that most respondents experienced a positive actual approach from the healthcare professionals. Many participants rated the importance of approach at a higher level than their actual experience. Participants in the context of diabetes care reported a more negative actual approach from the healthcare professionals than did participants in the other contexts and considered the healthcare professionals’ approach towards them as being less important. The results for the entire group indicated that the participants felt a low level of alienation from the professional care. Participants in the context of the care of older people reported significantly lower level of feeling of being alienated than did participants in the contexts of psychiatric care and diabetes care. The differences between participants in diabetes care and other care contexts can possibly be explained by a more fully implemented self-care approach among the patients in diabetes care than in the other care contexts. Even though the results are quite positive, it is still important that nurses consider a family-centred approach to better adapt to the needs of both the family members and the patients.
Publicerad: 7 mars, 2022
Rapport 2024:3. Stiftelsen Äldrecentrum har följt upp Stockholms stads satsning på specialiserade hemtjänstgrupper, som genomfördes för att utveckla den personcentrerade vården och omsorgen för personer med demens. Kartläggningen rörde framför allt vilken kompetens som fanns i grupperna och hur de organiserade sitt arbete.
Rapport 2024:2. Stiftelsen Äldrecentrum har sammanställt registeruppgifter om äldre personer i Stockholms kommun med insatser från både hemtjänst och hemsjukvård för att beskriva vad som kännetecknar denna grupp. De visar sig över lag vara ett par år äldre, en högre andel kvinnor, ha sämre kognitiv förmåga och ett större behov av stöd i det dagliga livet, än de med enbart hemtjänst.
Everyday life in rural places can be hampered by many different infrastructural challenges for which technology is often considered a panacea. However, little is known about technological interactions among people living rurally with dementia, who more often live alone and make up a larger proportion of the rural population in England compared to urban.
